Friedreich's Ataxia Research Alliance, FARA; Ataxia UK; Amicus Therapeutics; Friedreich Ataxia Research Association; National Ataxia Foundation, NAF; Medical Research Future Fund; Medical Research Futures Fund; Ministero dell’Istruzione, dell’Università e della Ricerca, MIUR; Fondazione Telethon, FT; National Health and Medical Research Council, NHMRC, (1106533, 1184403, 1046037); National Health and Medical Research Council, NHMRC